We feel so fortunate to be within easy driving distance to Emory Clinic's ALS Center, led by Dr. Jonathan Glass. Although Chris had been referred to this doctor by the first neurologist who diagnosed his disease, it was the hard work of one of our church members who had powerful connections that got us into the clinic earlier than is customary. We were there from 8:30 till about 2:00 this afternoon, meeting with their multi-disciplinary team about everything from advice on nutrition, occupational therapy, the latest gadgets to make Chris's breathing more comfortable. But the best medicine of all is the warm and sincere hug that each staff member brought to both Chris and me. I am so moved by their sincere compassion and loving concern.
Chris and I are also equally moved by the numerous cards, telephone calls, facebook messages and packages that you are sending our way. We've heard from those who were in Chris's youth group so long ago, parishioners who have moved to other places in the past years, and even dear friends who swapped babysitting duties with us so long ago when Katie was an infant. Bread baskets from Signal Mountain, steaks from Florida, and even bagels from NYC -- we are overwhelmed by so many gifts of love. And now that Chris has been back home from the hospital, homecooked meals arrive from church members once again in faithful supply! There was a short time after initially hearing of Chris's diagnosis that I just felt all the colors from the universe were fading to the dull and drab -- but last night as I read yet another card with the sweetest of thoughts from some former youth during our early years at COS, I was just overjoyed with the realization that Chris and I are once again saying to one another, "Life is rich beyond measure!"
Thank you all so much! Chris is sleeping from our long day's journey at this moment, but he sends his love and thanks along with mine.
Love, Carol
So thankful for the return of color to your vision, Carol. Sometimes our lives are hit so hard with the unthinkable that we are shocked into the dreariness of gray. But in the renewed understanding of hope, we recognize the gray to be part of a greater spectrum of light and love. I join you in the joy of connection -- the friendships and warmth which surround you. May each precious moment you share with Chris continue to be brightened with gratitude. Much, much love to you -- I look out my window at this very moment in the direction of where you are some 4 or 5,000 or more miles away and send it to you with heartfelt prayers.
ReplyDeleteWe were shocked and saddened to learn about Chris' illness. We will always fondly appreciate Chris and the COS community. We hope and pray for peace and comfort for Chris. Please know that your family is in our thoughts and prayers.
ReplyDeleteShiraz & Kat
Our prayers combine with all of your friends of all faiths. Our spirits were together at the synagogue in Chattanooga and at the church on Signal Mountain 30 years ago, and they are together today. Elissa & Rabbi Rick
ReplyDelete